Wednesday, February 01, 2006

Our Situation Update:
Tommy says (Jenny editted this one):

Here are some of my current diabetes accessories. My blue Medtronic Minimed 515 on the left and my BD Paradigm Link meter is on the right. The two of them talk to each other and give us tons of information.

I use the MM 515 all the time, except at basketball and cross country practice. It gives me Novolog insulin constantly. I have to change the site every three days. (I use Silhouette infusion sets. I numb the area , and then I insert the infusion set. My Mom takes care of filling the pump with new insulin.) I will probably be pumping until the cure because I like it much better than shots.

I use the BD Paradigm Link meters, I have two, to test my blood sugar 9-14 times a day. I test three times during school hours. My Mom, and sometimes my Dad, test my blood sugar 2-3 times in the middle of the night. After having diabetes for 10 months, my fingertips are getting pretty bad.

Sometimes I have lows that I don't feel, but I usually catch them because I test so often. I have never felt a low when I am sleeping, but my parents have caught them with their checks.

We have ordered the Medtronic Minimed Guardian RT to help manage my blood sugar. It will give me a blood sugar reading every 5 minutes. I will be able to scroll to find past readings and get an idea of how fast or slow I am going up or down. It alarms if I go too low and alarms if I go too high.

I will attach it somewhat like I do the insulin pump. The attachment is currently the part that I'm most concerned about. I might decide that I'd rather manage without it, but I want to give it a try. I currently only use my stomach for my pump.

At my last endocrinologist appointment, my Mom asked my doctor if we could try the Guardian RT. He thought about it for a few days and then sent the prescripiton in to Medtronic Minimed. We paid for it a few days ago, so I am expecting it next week sometime. (The Guardian RT is not covered by insurance, and not FDA approved for children yet because it is so new.)

My Mom and I would be happy to answer any questions. We are new to blogging, so any suggestions for our blog would be fine.


Ultraclyde said...

I can't wait to hear more about your results with the Guardian. My daughter is 6 and we would love to get one for her when they become available in Canada.

Sandra Miller said...

First-- Welcome, Tommy! I look forward to reading your thoughts and feelings about the Guardian-- especially since I have a 10-year old son who may be following in your footsteps in the future...

Good luck!

And ultraclyde-

It seems that Minimed's pump/CGMS combo is available NOW in Canada.... check out this site to learn more.

Ellen said...

I'm so excited to hear all about your brave adventures with the Guardian. You realize you're a pioneer :-). THANK YOU for blogging!

Nicole P said...

Welcome, Tommy, to you and your mom. I am very much looking forward to hearing about your experiences.

;) Nicole